http://livingwithlupus.forumotion.com/doctors-specialists-f6/-t1.htm Thu, 14 May 2009 15:52:06 GMT 10 http://illiweb.com/fa/empty.gif http://livingwithlupus.forumotion.com/doctors-specialists-f6/-t1.htm http://livingwithlupus.forumotion.com/doctors-specialists-f6/new-doctors-t143.htm Jenny I am starting with my new Doctors....just after I had the last lot all sorted!! LOL I saw my new Haematologist two weeks ago, nice enough bloke, I think we will get on OK. We will sit tight and wait to see what happens with me, so next visit is in July. Today, I saw my new Rheumatologist. She told me I was not as intimidating in real life as I seemed to be on paper!!! That was a new comment!!! I think, too, I will get on quite well with her....we like the same perfume!! LOL.... I ... Doctors/Specialists Thu, 14 May 2009 15:52:06 GMT http://livingwithlupus.forumotion.com/doctors-specialists-f6/new-doctors-t143.htm#1086 http://livingwithlupus.forumotion.com/doctors-specialists-f6/new-doctors-t143.htm http://livingwithlupus.forumotion.com/doctors-specialists-f6/second-opinion-t134.htm AbsolutelyFab I trust my rheumy's DX. She is very thorough and is also a professor of medicine at the local University in Grand Forks, ND. Both my husband and my parents want me to get a second opinion at Mayo in Rochester. I only live a few hours away from Rochester but would need to spend an entire week there for the testing. Not sure if I can afford it or if it would be worth it....my dad is currently being treated there for non-life threatening prostate cancer and he says they are amazing!! Has ... Doctors/Specialists Thu, 30 Apr 2009 17:24:16 GMT http://livingwithlupus.forumotion.com/doctors-specialists-f6/second-opinion-t134.htm#1044 http://livingwithlupus.forumotion.com/doctors-specialists-f6/second-opinion-t134.htm http://livingwithlupus.forumotion.com/doctors-specialists-f6/awareness-for-doctors-too-t127.htm geoff I was lucky... I only had a month of visiting doctors who all scratched their heads, before finding out I had cutaneous lupus (or discoid) by going straight to a Dermo/Dermie. But I've heard of so many dear people who take 'ages' to discover they actually have SLE. The stress of not knowing what is happening to you, can't help the situation. I just think that the general medical profession should be made aware of lupus, just as much as the general public should be. This could lead to further ... Doctors/Specialists Sun, 12 Apr 2009 10:42:14 GMT http://livingwithlupus.forumotion.com/doctors-specialists-f6/awareness-for-doctors-too-t127.htm#984 http://livingwithlupus.forumotion.com/doctors-specialists-f6/awareness-for-doctors-too-t127.htm http://livingwithlupus.forumotion.com/doctors-specialists-f6/dermatologist-rosacea-t64.htm Rileysmom I have been experiencing a severe burning sensation on my entire face, to the point were it will even wake me up at night. The thing is I have little to no redness at all, very wierd. I talked to my rhuemy about it when I saw him last week and he said "ah it's just the lupus, but you may want to see a dermatologist." I made an appointment and saw the doctor today. To my surprise the dermatologist said it was "rosacea." He said there were several types of rosacea, typical rocacea ... Doctors/Specialists Mon, 27 Oct 2008 20:07:52 GMT http://livingwithlupus.forumotion.com/doctors-specialists-f6/dermatologist-rosacea-t64.htm#482 http://livingwithlupus.forumotion.com/doctors-specialists-f6/dermatologist-rosacea-t64.htm http://livingwithlupus.forumotion.com/doctors-specialists-f6/negative-ana-t61.htm Rileysmom Hi All, I received a call from my rhuemies office earlier this week telling me that my lab work looked great and that the MRI/A I had done last week on my brain also looked good. What a relief that was! Anyway, the faxed over a copy of the results to me and to my surprise my ANA even came back negative, this is the first time in several years. I noticed out to this side the doctor had a "? mark SLE" written down. I'm not sure what this means. I don't go to see him until November ... Doctors/Specialists Thu, 16 Oct 2008 17:00:33 GMT http://livingwithlupus.forumotion.com/doctors-specialists-f6/negative-ana-t61.htm#436 http://livingwithlupus.forumotion.com/doctors-specialists-f6/negative-ana-t61.htm http://livingwithlupus.forumotion.com/doctors-specialists-f6/sed-rate-testing-t57.htm AbsolutelyFab My joint pain has worsened but my Sed Rate, as usual, remains within the normal range. Normal is 0 - 20; my sed rate from today's test was 13. I believe this is where it was last time it was tested, as well. I'm still not sure how I can have this much pain (5 or 6 on a scale of 1-10) without an elevated sed rate. I guess this is where I am fortunate to have a Rheumy that listens to what I am saying and to my symptoms....not strictly lab work. Beth Doctors/Specialists Mon, 13 Oct 2008 18:25:15 GMT http://livingwithlupus.forumotion.com/doctors-specialists-f6/sed-rate-testing-t57.htm#410 http://livingwithlupus.forumotion.com/doctors-specialists-f6/sed-rate-testing-t57.htm