A Lighthearted Question.....

Not really sure what I have learned from all of this....except it has changed the lives of my family, my new partner and not to mention, my own. Dreams and expectations don't seem to exist for very long with me. I make a plan or have a dream and something usually happens to put it all on hold or demolish it completely....other than me getting married soon !!!

I have no ideas on overcoming some of all the 'stuff' other than when someting kicks you over, pick yourself up, dust yourself off and just keep going!!!!

Hi.....it has been a long time since I have written here........after being consumed w/ my ;upus,fibro,etc. for the past 2 years worse than my entire 23 years living w/ this disease....well, I guess I needed a "break" from writing about it!!!But just saw this thread and wanted to give my 2 cents!!!!!It is nice to see how this site has grown...many thanks to my "sis" Maz!!!!!Anyways....I was Dx 23 years ago and have never felt why me....but I can relate and feel like this is not the path that I would have chosen...and yes, others have it worse,it could be worse,god only gives us what we can handle, etc....but the bottom line is this and all other illnesses are difficult to deal with.....And having an invisible disease is even a bigger challenge in many ways...BUT it is what it is...I am 50,single,no family,live on social security,barely make ends meet,am sick a lot......and I could go on ...but I try to accept my life and diseases,am good to myself,try to always stay grateful for what I do have and do the best I can.I also try to help others in any possible way....even if it is just a phonecall.....I try to get out of myself...but I also honor myself and do not push when I'm not able to.After spending half my life sick and pretty much alone, I have learned what works for me...I am no saint nor perfect and there are times I cry and say "enough already!"But as I said, it is what it is and that is it!!!I know I have blabbed and do not know if this helped anyone but it did me!!!!!You all take care and am sending lottsa hugs...Barbara xox

Guess who

Hello Barb!!! So good to hear from you!! I missed you!!!

Monica