A Lighthearted Question.....

Who picks us to have all of this cr*p anyway????

Guess it's the 'Why Me' part of a newly diagnosed cycle..... (Fibro recently)

You know, that is a good question. I have asked that myself and I have gone through that when my toddler was diagnosed with type 1 diabetes. I always come back and tell myself that God doesn't give me more than I can handle and that maybe my experiences can help other people in their time of need. That's the only thing that gets me through it sometimes. If I can help others out and something good comes out of it, then I feel like I am achieving something. Hope that helps.

Monica

Thats a valid point but sometimes, I feel as though I have been handed far more than enough....... I would like a break occasionally and to have things go right for a change. It has been well over 10 years that I have been doing what is thought to be an amount I can handle...... It hasn't only been my own medical stuff, my parents, stuff with the kids etc etc etc..... I am sure you know how it goes....

I know. I feel the same way. I have to deal with a lot with my son, not only is he diabetic, he is a brittle diabetic to boot, meaning we cannot find any patterns with him and he is extremely unstable, so we have to check his blood sugar constantly, so I have to check on him every 3-4 hours in the night, which makes it very hard for me having lupus because my husband just doesn't get it even though he tries to, he still leaves it all on my shoulders, which is fine. I'm used to it now. But as far as him and I go, we can't find a babysitter so we can even spend time together because no one can even watch him, except for my mom, who has her hands full too. It really sucks. So trust me, I know what you mean. I just want a weekend away with my husband and not to get up in the middle of the night several times. I think I'd probably end up sleeping the entire weekend. LOL!!! So much for a romantic weekend. I know what you mean girl!!

You know, this is why places like this one are so VALUABLE. Its only US who knows the drum.....Other people think they know, they do try for us, most of the time but just because we have what we have it gets us down at times, overwhelms us and no-one but others in the SAME position REALLY know.

If I could, I would.......I'd have no problem having a weekend at your place......If I win lotto, I'll be around, OK??!!

Thanks for the vote of "I know, I REALLY know'.......Means heaps....

I always felt that if I didn't have bad luck I wouldn't have any luck at all!! Went and saw my PCP yesterday and he thinks I "may" have discoid on top of SLE. A friend recently sent an email that had a list of things to be thankful for: you know, food, clothing, shelter, etc. I agree wholeheartedly. There are lots of people who have their health and have no food, shelter, etc. Then I hear of the little girl who recently had an operation where doctors removed, I believe, 7 of her organs to do the surgery and then put them back. She is fine now. Ayway, no more "why me" for me!

Hi Girls,

I was always the one who would do anything for anyone, for example; my Mum has always been an unwell person and relied on me to do a lot for her, I would always comply (which she took advantage of on more than one occassion) to the point that I not only put her and her needs before my own but also before my husband and children! I know longer do this, I now put my own and my families needs before anyone elses! Being dx'd made me realise that I need to slow down, put myself and my family first but most importantly take care of me!

So.....Why me? My body was telling me to slow down and rest, mind you it's really difficult when I am in immense pain and cursing this damned disease with every four letter swear word I can think of

OK that's my bit of philosophy for today it's done my brain in and I need to go have a nap

Take Care
Love and Hugs
xxxMaz

I agree with you Maz............when all else fells, and don't know what to do.. A NAP always helps !!!!!!!!!!!!!!!

Melody

Or a glass of wine....

Rowing regatta....HERE I COME!!!!!

Girls... There is no-way I know exactly what you're all going through as I don't have SLE - but I do understand.

This may seem strange to many... but being diagnosed with cutaneous lupus has been life changing - and in one way, for the better. After meeting so many others who were/are doing it tougher than myself, I finally had a purpose in life. If I didn't have a form of lupus, I wouldn't have met so many wonderful people.

As Always... Geoff

Thanks Geoff
-For understanding and also for being on our side! Also for the work you do towards making others aware of our Disease!

Take Care
xxxMaz

I guess that what I have learned throughout the last year is that I need to slow down and spend more time with my family. I have always been a Type A personality that could not sit still and was always on the go. No matter what anyone tried, I would not slow down and smell the proverbial roses.

As I am not able to go at this fast pace any longer, I have learned to relax and spend time just being still!

Hugs,
Beth

Hi Girls (and not forgetting Ray!!)

I suppose with life we never really know what's around the corner - so to speak.

I just hope it's positive for all of you - and try not to stress with the negatives - "Tough times won't last if tough people do!"

(Sure, it's easy to say, but a quite a few thoughts go through your head when you're out there on your own, talking to yourself on a bike all day)

Geoff...