Sjorgens Syndrome
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Re: Sjorgens Syndrome
Hey the flush would not work at my house because it doesn't effect the water temp, I'm for the wack with the bloom
all kiddin aside BETH don't be playin with your meds just to prove a point!!!!!
To me the age and weight thing should not be an issue as long as you get to feelin better what ever your doin.
Anyway take care
RAY
all kiddin aside BETH don't be playin with your meds just to prove a point!!!!!
To me the age and weight thing should not be an issue as long as you get to feelin better what ever your doin.
Anyway take care

yardman417- Number of posts: 172
Age: 58
Location: Grove Oklahoma
Registration date: 2008-09-10
Re: Sjorgens Syndrome
If the brrom is to heavy. Im sure you have a wooden spoon around the house somewhere.
People do respond differently to this disease. I had a cousin come up to me at a birthday party. and said in a low whisper.. Areyou ok? I heard you had lupus.. Like i was on my death bed.. If i had known where the broom was then i would have wacked her.We all have our good and bad days. I fell blessed to have the good docs that we have to help us these days..!!
take care
Mel....... and take a picture and post of the wacking.. hehehe
People do respond differently to this disease. I had a cousin come up to me at a birthday party. and said in a low whisper.. Areyou ok? I heard you had lupus.. Like i was on my death bed.. If i had known where the broom was then i would have wacked her.We all have our good and bad days. I fell blessed to have the good docs that we have to help us these days..!!
take care
Mel....... and take a picture and post of the wacking.. hehehe
Melody297- Number of posts: 55
Age: 45
Location: Conyers, Georgia
Registration date: 2008-09-09
Re: Sjorgens Syndrome
Hello everyone!
The results from the Mayo Clinic arrived today. My husband gave me a briefing since I am at work. So here is what I know so far....
Although the Shirmer's test was negative, the bloodwork confirmed Sjogren's. I also have high blood pressure. This is why I've been short of breath, sweating a lot more, and had different headaches then my regular migraines.
My big question now is.....is the blood pressure a result of the Prednisone? The weight gain from inactivity & Prednisone? Kidney issues?
Anyone else have to deal with high blood pressure, too?
Hugs!
Beth
The results from the Mayo Clinic arrived today. My husband gave me a briefing since I am at work. So here is what I know so far....
Although the Shirmer's test was negative, the bloodwork confirmed Sjogren's. I also have high blood pressure. This is why I've been short of breath, sweating a lot more, and had different headaches then my regular migraines.
My big question now is.....is the blood pressure a result of the Prednisone? The weight gain from inactivity & Prednisone? Kidney issues?
Anyone else have to deal with high blood pressure, too?
Hugs!
Beth

AbsolutelyFab- Admin
- Number of posts: 170
Age: 45
Registration date: 2008-09-04
Re: Sjorgens Syndrome
I had my follow-up appointment with my regular rheumy this morning. After looking through the letters from the ENT & rheumy at Mayo Clinic, she said I DO NOT have Sjogren's at this time. It looks like the ENT based her diagnosis on the swollen salivary glands and dry mouth, but the bloodwork labs and negative Schirmer's DID NOT show Sjogren's. My diagnosis is still considered UCTD moving towards Lupus (& possibly Sjogren's). I trust my rheumy here 100%. She does very thorough physical exams and the Mayo rheumy just talked with me and looked at past lab tests from my docs here.
I asked my rheumy why would I be treated for Lupus if my ANA, sed rate, etc. are all normal. She said that based on the number of symptoms I have it is Lupus and that the blood work can change and go back and forth between normal and positive for Lupus at any time. That is why we do the regular labs. She said that the treatment appears to be keeping everything in line, so she is going to start tapering my prednisone. I will remain on the plaquenil & mtx. If my joint pain starts getting worse again, due to the tapering of prednisone, we know that the lupus is active right now.
Hugs,
Beth
I asked my rheumy why would I be treated for Lupus if my ANA, sed rate, etc. are all normal. She said that based on the number of symptoms I have it is Lupus and that the blood work can change and go back and forth between normal and positive for Lupus at any time. That is why we do the regular labs. She said that the treatment appears to be keeping everything in line, so she is going to start tapering my prednisone. I will remain on the plaquenil & mtx. If my joint pain starts getting worse again, due to the tapering of prednisone, we know that the lupus is active right now.
Hugs,
Beth

AbsolutelyFab- Admin
- Number of posts: 170
Age: 45
Registration date: 2008-09-04
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